Facing the Diagnosis”

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Waking up to an autoimmune disorder is not something you ever prepare for. One day, I was just living my life, and the next, I was caught in a whirlwind of doctor visits and endless tests. My days blurred together—waiting rooms, sterile hallways, the quiet hum of machines, and the constant hope that someone would finally tell me what was wrong. Each appointment felt heavier than the last, and the uncertainty gnawed at me. I was exhausted, scared, and so alone in my thoughts. Then came the call. The doctor’s assistant wouldn’t give me the results over the phone. She told me to come in, and to bring someone with me. My heart dropped. I knew, in that moment, that my life was about to change forever. Fear wrapped around me like a cold blanket. I thought, “Am I dying? What will happen to my kids ? How will I go on?” My mind raced with questions I couldn’t answer. My stomach twisted with dread, and I felt like I might be sick. Sitting in that office, I heard the words that would reshape my world: I had an autoimmune disorder attacking my central nervous system called Mogad. My  nerves were under siege. I was already blind in one eye—what else would I lose? The news hit me like a tidal wave. I felt myself sinking into a deep depression and anxiety, unable to see a way forward. I had to stop working, give up the things I loved, and face a future filled with surgeries and uncertainty. It took time to even begin to process what was happening. The darkness felt endless, but somewhere inside, I knew I had to keep going—for myself, and for my kids. This was the beginning of a new chapter, one I never asked for, but one I would have to find the strength to face.




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